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      High Price Medicines and Health Budgets: The Role Patients' and Consumers' Organisations Can Play.

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      European journal of health law
      Walter de Gruyter GmbH

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          Abstract

          Healthcare systems face challenges due to budget constraints, complex therapies, and new treatments for rare diseases. One of the most successful patient advocacy campaigns of all times was initiated by people living with HIV and AIDS in African countries. Facing industry giants, they won court cases allowing governments to ignore intellectual property rights when the price of a medicine was abnormally high. This led to the approval of the international 'Agreement on Trade Related aspects of Intellectual Property Rights', which contributed to improving the availability of AIDS treatments for millions of people. Beyond this successful patient advocacy campaign, patient organisations have an important role to play in national discussions on prices of treatments and pharmaceuticals, especially for rare diseases. This article first discusses the specificity of the pricing of orphan medicinal products, and then provides an overview of some of the important actions that can be carried out by patients' organisations.

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          Author and article information

          Journal
          Eur J Health Law
          European journal of health law
          Walter de Gruyter GmbH
          1571-8093
          0929-0273
          May 18 2020
          : 27
          : 3
          Affiliations
          [1 ] European Organisation for Rare Diseases (EURORDIS) Paris France.
          Article
          10.1163/15718093-BJA10008
          33652398
          32b02c16-55d4-4699-b206-24e8ea0ab72d
          History

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