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      Research, #Huh? Improving research awareness in NHS Grampian through a website and more

      research-article
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      Research for All
      UCL Press
      NHS Grampian, clinical research, #Huh, evaluation, website development, stakeholder engagement

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          Abstract

          Our public-facing website #Huh (Helping U Help) – www.grampianclinicalresearch.com – has been designed to engage public, patients and staff in clinical research. We have included views from patients and the public in its design and content, using multiple methods to gather feedback, some proving more successful than others. This article presents how our website was developed, including the different methods we used to gather views from the patients and public before, during and after its development. We hope that this paper will give useful insights to other people interested in incorporating stakeholder feedback into their own work.

          Most cited references32

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          ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study

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            Factors affecting patient participation in clinical trials in Ireland: A narrative review

            Objective Clinical trials have long been considered the ‘gold standard’ of research generated evidence in health care. Patient recruitment is an important determinant in the success of the trials, yet little focus is placed on the decision making process of patients towards recruitment. Our objective was to identify the key factors pertaining to patient participation in clinical trials, to better understand the identified low participation rate of patients in one clinical research facility within Ireland. Design Narrative literature review of studies focussing on factors which may act to facilitate or deter patient participation in clinical trials. Studies were identified from Medline, PubMed, Cochrane Library and CINAHL. Results Sixty-one studies were included in the narrative review: Forty-eight of these papers focused specifically on the patient's perspective of participating in clinical trials. The remaining thirteen related to carers, family and health care professional perspectives of participation. The primary factor influencing participation in clinical trials amongst patients was related to personal factors and these were collectively associated with obtaining a form of personal gain through participation. Cancer was identified as the leading disease entity included in clinical trials followed by HIV and cardiovascular disease. Conclusion The vast majority of literature relating to participation in clinical trials emanates predominantly from high income countries, with 63% originating from the USA. No studies for inclusion in this review were identified from low income or developing countries and therefore limits the generalizability of the influencing factors.
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              Qualitative research in nursing and healthcare

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                Author and article information

                Journal
                rfa
                rfa
                Research for All
                RFA
                UCL Press (UK )
                2399-8121
                22 September 2020
                : 4
                : 2
                : 180-193
                Affiliations
                [1]NHS Grampian Research and Development, Aberdeen, UK
                Author notes
                Corresponding author: Email: emma.berry7@ 123456nhs.net
                Article
                10.14324/RFA.04.2.04
                975819c5-2163-48ef-920a-9bf2759c7662
                Copyright © 2020 Berry and D’Alessandro

                This is an open-access article distributed under the terms of the Creative Commons Attribution Licence (CC BY) 4.0 https://creativecommons.org/licenses/by/4.0/, which permits unrestricted use, distribution and reproduction in any medium, provided the original author and source are credited.

                History
                : 10 May 2019
                : 19 December 2019

                Assessment, Evaluation & Research methods,Education & Public policy,Educational research & Statistics
                evaluation,#Huh,NHS Grampian,stakeholder engagement,clinical research,website development

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